Our Goal

Frankie Says Fight Rett.org, Inc. (www.frankiesaysfightrett.org) was created to provide broadened awareness and support for people and families affected by Rett Syndrome. The organization raises support from donations, events, raffles, concerts, and other means as presented to further the mission of fighting for families struggling through Rett Syndrome. The funds that are raised are used to expand information and help other families and parents/guardians of girls/boys with Rett Syndrome. Funds raised are given to help families supplement day-to-day needs, travel expenses for medical care, respite care for parents/caregivers, memorial funds, and help supplement the cost of medical devices needed to assist in their day-to-day lives. Care comes first!

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We have no paid employees. Almost everything we receive in donations is given away to Rett families with the exception of small overhead costs for the website and a business PO Box. It’s through the generosity of others that we can continue to help our Rett Community.

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Frankie Says Fight Rett.org, Inc. is a 501(c)3 Tax Exempt Organization. Tax ID 46-5684253.