Frankie Says Fight, Inc. ( was created to provide broadened awareness of Rett Syndrome, a neurodevelopmental disorder that almost exclusively affects girls. The organization will raise support from donations, events, raffles, concerts, and other means as presented to further the mission of fighting Rett Syndrome. The funds that are raised will be used to expand information to help other friends and parents of girls, with Rett Syndrome. Funds will also be used to benefit children, like Frankie, to supplement travel expenses for medical care and supplement the cost of medical devices needed to assist in their day-to-day lives, as well as, for Research in finding treatments and ultimately a cure. is a 501(c)3 Tax Exempt Organization.  Tax ID 46-5684253